The Gluten Summit – A Recap

the Gluten Summit pic

Back in November, I came upon a webinar series called The Gluten Summit, presented by Dr. Tom O’Bryan, also known as theDr.com. During the week-long series, I was amazed by the 29 world-renowned doctors, scientists, researchers, etc. Not only were they bringing to light the vast world of research that explains Celiac disease, but they were broadcasting to the medical community and world that gluten sensitivities were not only very real, but much more dangerous and deadly than I had ever imagined. If you wish to order the series, click here for information.

This weekend, theDr.com presented a follow-up webinar entitled, “The Gluten Summit: Now That We Know, Where Do We Go?” It was a 90-minute, very technical look at Celiac disease and gluten related disorders and what to do if you suspect you might be affected by them. Here are the highlights I took from the talk:

– Auto-immunity issues all have a common source: Inflammation. Yet our medical community treats them all differently based on which part of the body is being effected. The list of auto-immune disorders is extensive, containing over 100 disorders, which include everything from rheumatoid arthritis to multiple sclerosis. Certain doctors on the panel, Dr. David Perlmutter in particular, would argue that issues like Alzheimer’s and ADHD should be on the list, as well.

-There are 3 things that must be present in the body for the development of an auto-immune disorder. 1-Genetic vulnerability (a weak link in the chain); 2-Environmental triggers (a loss of tolerance to certain foods or toxins- the worst offender is gluten); 3-Intestinal permeability (a leaky gut – discovered by Dr. Alessio Fasano).

-The umbrella term “Gluten-Related Disorders” can be used to used, but there are really 4 key issues that people have with gluten. 1-Celiac disease (now effects about 1/100 people); 2-Non-celiac gluten sensitivity (about 20/100 people); 3-Wheat allergy (just to wheat specifically); 4-Non-immune nutritional deficiency (body is starving because it can’t take in any nutrients).

-If you suspect you have a gluten-related disorder (you feel better when you don’t have it), you should be tested for gluten sensitivity. The problem is, the best test for Celiac disease is Transglutaminase IgA — but it still gives FALSE NEGATIVES 7 out of 10 times!!! It is only positive if you are at the end stages of the disease, meaning there is tremendous damage to your intestines. And what’s worse is that many doctor’s order tests that are even less accurate! Yet, he orders the test, tells you it is negative, and you go on with having your health issues, thinking that you must not be effected by gluten because the test said so! So what do you do? Talk to your doctor about ordering one of the following (some insurance companies will cover if your doctor orders them, though you can order directly from the companies):

– From Cyrex Labs: MUST DO: ARRAY 2: tests for Intestinal Permeability; AND ARRAY 3: tests for 10 peptides of gluten; IF YOU CAN AFFORD IT, ARRAY 5: tests for predictive auto-immunity, includes testing for 24 tissues in the body to look for elevated antibodies AND/OR ARRAY 4: Cross-reactivity test; looks for reactions to other common food sensitivities such as: dairy, rice, corn, quinoa, potato, rye, barley, egg, soybean, etc. These are common foods that people turn to on a gluten free diet. Click here for a comprehensive look at each test.

– From ALCAT labs for those not in the United States: Premium Comprehensive testing panel, includes the gene test for Celiac Disease (which is about 93% accurate).

– If you have multiple food sensitivities (like me!), you have intestinal permeability.

– To get a comprehensive look at your health issues, fill out the Medical Symptom Questionnaire (MSQ). It will help you have a clear picture of your health and will give you a starting place in your discussion with your doctor. (Dr. O’Bryan recommended filling out the questionnaire now and then 3-4 months into a new eating protocol, to measure your progress).

Dr. Mark Houston talked about link between gluten sensitivity and heart disease. He stated that 50% of people who have a heart attack do NOT have elevated cholesterol. SpectraCell Labs does a test called the LPP- Lipoprotein Particle Profile Test that he recommends. Click here if you want more info.

-Celiacs have a much higher early mortality rate than non-celiacs, with or without a gluten free diet. You must first STOP consuming gluten, but you must also look at proper nutrition over a long time period (you didn’t get into this condition overnight, and you won’t get out of it that quickly either).

-If you can work with a doctor that has worked with gluten sensitivities before, the process will be much smoother. Click here for a doctor that has been certified as a Gluten Practitioner. If you haven’t, it is your job to ask them to listen to you and learn along with you. There is a world of research about gluten disorders.

-Once you have established the proper diet for yourself, you must heal your gut lining (this is the step I am on). Dr. O’Bryan helped NuMedica design the Gluten Sensitivity Packs and other products to support your healing during the first year. He recommends the packs, tri-flora probiotics, GI Restore, Vitamin D3 (drops) and PRP Balance Spray. All of these products can be found on his website.

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